Protected: Community Engaged Research

Spectrum of community engaged research

Partnerships with communities cover a spectrum of community-based, community-engaged, and community-based participatory research (CBPR).

(Youth) Participatory Action Research (Y)PAR

Involving youth and adults in responsible, challenging, and collective action that seeks to benefit an organization or larger community. All individuals in the partnership have the opportunity to engage in planning, decision making, and action consistent with their own interests and skill. [Zeldin and Collura 2010]

Community Based Participatory Research (CBPR)

Community-Based Participatory Research is a collaborative research approach that is designed to ensure and establish structures for participation by communities affected by the issue being studied, representatives of organizations, and researchers in all aspects of the research process to improve health and well-being through taking action, including social change. [AHRQ] Formal CBPR includes the application of 10 key principles [Israel 2013], the primary distinction between this and other approaches is that community members lead the development of research questions, the research process, and dissemination of findings [Wallerstein, et. al. 2017].

Community Based Research (CBR)

CBR in public health focuses on inequities through active involvement of community members and stakeholders (e.g. partners). Partners contribute their expertise to enhance understanding of a given phenomenon and to integrate the knowledge gained with action to benefit the community involved [Israel, et. al 1998]. In CBR, the institutional researcher works to invert some conventional power dynamics in research by involving partners in the development of research questions and the conduct of research, but typically leads the research process and retains decision-making power.

Community-involved

[find definition]

Community Placed Research (CPR)

CPR conducts “research in a community as a place or setting—in which community members are not actively involved—versus conducting research with a community as a social and cultural entity with the active engagement and influence of community members”. [Israel, et. al 1998]

Why do community engaged research?

Community engagement in research enables ACADEMIC RESEARCHERS and COMMUNITY ORGANIZATIONS to collaboratively [Yale School of Medicine ERIC]:

Ask questions that are meaningful to community members
Develop and evaluate effective programs for community organizations
Design meaningful and effective community interventions that are culturally and linguistically appropriate for communities
Increase the validity within the study by improving accuracy of measurements
Conduct research that can be implemented in partnership with the studied communities
Demonstrate effectiveness of programs for future funding opportunities

Increase legitimacy of work among funders, policy-makers and other stakeholders

UW Epi projects

[link to UW epi example projects page]

Resources

GETTING STARTED

UW Epi “Standard Operating Procedures for Researchers Conducting Community-Based Projects”

Human subjects (IRB/HIPAA), finance, relationship maintenance/management, expectations for communication, research practice, timeline, human subjects for community partners, COI training

TRAINING

Community-Engaged and Community-Based Participatory Research (UW subscribed training module) – Collaborative Institutional Training Initiative (CITI Program)

- Community partner human subjects training – University of Illinois Chicago Center for Clinical and Translational Science

Introduction to Community-Based Participatory Research – Fred Hutch/University of Washington Cancer Consortium Office of Community Outreach & Engagement (OCOE)

The course is hosted on the Hutch Learning website. Fred Hutchinson Cancer Center employees and affiliates can search “CBPR” on Hutch Learning website or contact enddisparities@fredhutch.org for access.